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Our Mission

The Dutch FOP Foundation aims to serve any field that may prove of interest to the Dutch FOP community.

Onze organisatie

The Foundation is exploring effective communication strategies to share information and education with the FOP community.

Become a Contributor

Support the Dutch Fibrodysplasia Ossificans Progressiva Foundation by gifts or by becoming a contributor.

General Data Protection Regulation

The European General Data Protection Regulation (GDPR) took effect on the 25th of may 2018.

Annual Accounts

See our annual accounts such as our policy plans, activity reports and financial annual reports.


There are multiple organizations worldwide that provide information on FOP. Read more about FOP on these websites.

Tax benefits from ANBI status

The tax authorities have granted the Dutch FOP Foundation the “Algemeen Nut Beogende Instelling” (ANBI – Institution Serving the Common Good) status. Charity donations are tax-deductible, under certain conditions.

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