There are now multiple organizations worldwide that provide information about FOP.
- USA – IFOPA– ifopa.org
- Argentina – Fundación FOP – http://fundacionfop.org.ar/
- Belgium – STOP FOP Belgium – http://spierziektenvlaanderen.be/fibrodysplasia-ossificans-progressiva/
- Canada – CFOPN – cfopn.org
- Germany – FOP E.V. – fop-ev.de
- France – FOP France – fopfrance.fr
- Great Britain – FOP Action – fopaction.co.uk
- Italy – FOP Italia – fopitalia.it
- Polen – FOP Poland – fop-poland.pl
- Scandinavia/Sweden – FOPSverige – fopsverige.se
- Spain – AEFOP – aefop-es.org
- Weldon Research Fund – weldonfop.org
Medical links:
- Vereniging Spierziekten Nederland – zorgwijzer.nl/zorgwijzers/spierziekten
- FOP Amsterdam info research and trials – www.vumc.com/branch/fop-amsterdam/
Various links:
- Floor for Design: Many thanks to Floor For Design for creating the Dutch FOP Foundation’s new house style – floorfordesign.com
- ZorgWijzer.nl – www.zorgwijzer.nl
- Nationale Hulpgids – www.nationalehulpgids.nl
- Iederin Iederin – The market place for home care, child care, domestic assistance, coaching and more! –https://iederin.nl/
