skip to Main Content

Arie and Gerda run for their godchild Luc

Source: De stem van Dordt - 29th of August 2018 Author: Fred van Dongen

Read more

FOP patient Richard Kiekosz in the broadcast of Kassa television show on Saturday 30 April 2016

How are the people in the Dutch Law Long-term Care doing? That was the subject…

Read more

RTL Late Night

18-year-old Seanie Nammock from London has been fighting the rare disease FOP for six years.…

Read more

Educational film

Watch an educational film by Prof. Dr. Emeritus J. A. Kittermann about Fibrodysplasia Ossificans Progressiva.…

Read more

I don’t want to be special (Dutch)

Click here for the pdf-file Source: Telegraaf daily newspaper, 6 April 2013. Author: Marion van…

Read more

Rianne’s mother relates: ‘My life is fully devoted to my daughter’ (Dutch)

When your pregnant, you hope the child will be healthy. Later I heard that my…

Read more
Back To Top