Arie and Gerda run for their godchild Luc
22 August 2018
Source: De stem van Dordt - 29th of August 2018 Author: Fred van Dongen
FOP patient Richard Kiekosz in the broadcast of Kassa television show on Saturday 30 April 2016
30 April 2016
How are the people in the Dutch Law Long-term Care doing? That was the subject…
RTL Late Night
24 April 2014
18-year-old Seanie Nammock from London has been fighting the rare disease FOP for six years.…
Educational film
30 December 2013
Watch an educational film by Prof. Dr. Emeritus J. A. Kittermann about Fibrodysplasia Ossificans Progressiva.…
I don’t want to be special (Dutch)
6 April 2013
Click here for the pdf-file Source: Telegraaf daily newspaper, 6 April 2013. Author: Marion van…
Rianne’s mother relates: ‘My life is fully devoted to my daughter’ (Dutch)
13 July 2012
When your pregnant, you hope the child will be healthy. Later I heard that my…
